This Cross-party group's purpose:
Wednesday, January 25, 2023
The next meeting of the CPG on Rare, Genetic and Undiagnosed Conditions will take place on 25 January at 1pm (on zoom).If you want to get in touch, you can contact Natalie Frankish
Address:
Post-d: natalie@geneticalliance.org.uk
MSPs, individuals and organisations who participate in and support this group.
Genetic Alliance UK - secretary
Alternating Hemiplegia of Childhood UK (AHC UK)
Autoimflammatory UK
Behcet's UK
British Liver Trust
CHAMP 1
Children's Health Scotland
EDS UK
Haemophillia Scotland
HSP Support Group
MyAware
NLRP12
Office for Rare Conditions
PNH Scotland
PSP Association
Rare Disease Nurse Network
The Aarskog Foundation
The Smith-Magenis Syndrome (SMS) Foundation
Turner Syndrome Support Society