Questions and answers

Question reference: S6W-39209

Asked by: Brian Whittle, MSP for South Scotland, Scottish Conservative and Unionist Party
Date lodged: Monday, 07 July 2025
Current Status: Answered by Tom Arthur on 30 July 2025

To ask the Scottish Government what action it is taking to address the reported variability of access across Scotland to the 12-month minimum guaranteed post-diagnostic support for people living with dementia.

The New Dementia Strategy for Scotland emphasises the importance of ensuring that people are supported to receive a timely diagnosis, delivered in a person-centred manner, and high quality Post-Diagnostic Support is received for a minimum of 12 months, irrespective of where they live or how old they are. This includes a diagnosis of dementia being followed with clear, consistent quality information and support options, underpinned by inclusive communication approaches, including Post-Diagnostic Support, rehabilitation and other supportive treatments to people with dementia and their care partners.

To support the delivery of this ambition, and address variation in access, we have continued to invest an additional £3.5m per year to Health & Social Care Partnerships to increase uptake of this support in communities across Scotland.

We have also commissioned IFF Research to undertake an independent evaluation of Scotland’s dementia Post-Diagnostic Support policy. To better understand how this is being prioritised and delivered locally, and provide evidence of the value and impact of Post-Diagnostic Support to date which will help inform future Post-Diagnostic Support policy, service planning and practice.

To support the evaluation, we are progressing work with data specialists in the Scottish Government, local government and Public Health Scotland to improve data collection on diagnosis and Post-Diagnostic Support, with the aim of publishing more accurate data on the numbers of people living with a diagnosis and the proportion of those diagnosed who access Post-Diagnostic Support. Early work has seen Public Health Scotland develop an initial version of a Dementia Index which brings together 5 points of data from across Health and Social Care. This data work is crucial in helping us to identify the number of people living with dementia who are accessing care and support, ensuring that this links into data from primary care.

Lastly, I also want to highlight the role that dementia community groups across Scotland play in supporting people to seek a diagnosis and improve access to Post-Diagnostic Support. Working with the National Dementia Resilient Communities Board, made up of local, national and third sector partners alongside the voices of lived experience, the Scottish Government has allocated around £1.45m since 2024 to enhance the resilience of community and grassroots supports for those who are living with dementia.

Question reference: S6W-39211

Asked by: Brian Whittle, MSP for South Scotland, Scottish Conservative and Unionist Party
Date lodged: Monday, 07 July 2025
Current Status: Answered by Jenni Minto on 29 July 2025

To ask the Scottish Government how the planned long-term conditions framework will be (a) prioritised and (b) resourced to address the (i) current and (ii) future projected burden of disease for such conditions.

The Scottish Government published its Health and Social Care Service Renewal Framework (SRF) on 17 June 2025. This Framework provides a high-level guide for change, to ensure the sustainability, efficiency, quality, and accessibility of health and social care services in Scotland. Within the SRF, we set out our commitment to publish the Long-Term Conditions Framework and its aim and outcomes will be closely linked to the principles of the SRF.

We are considering using an evidence-based process to determine which improvement work will be prioritised and details of this will form part of the Long-Term Conditions Framework which we will publish in December 2025. Resources will be addressed as part of the ensuing series of action plans.

Question reference: S6W-39080

Asked by: Brian Whittle, MSP for South Scotland, Scottish Conservative and Unionist Party
Date lodged: Monday, 30 June 2025
Current Status: Answered by Jenni Minto on 24 July 2025

To ask the Scottish Government, as part of the initiative to provide more specialist clinical care in the community, as detailed in the Health and Social Care Renewal Framework, whether increased specialist support in local settings will be available for people with inflammatory bowel disease in order to allow those with Crohn’s disease or colitis to manage their condition closer to home.

The Scottish Government has overall responsibility for health and social care policy in Scotland; however, the statutory responsibility for delivering or commissioning services at a local level lies with local authorities, NHS Boards and integrated health and social care partnerships. Operational decisions, including whether there is a need for additional specialist nurses, are therefore matters for those bodies.

Question reference: S6W-39079

Asked by: Brian Whittle, MSP for South Scotland, Scottish Conservative and Unionist Party
Date lodged: Monday, 30 June 2025
Current Status: Answered by Jenni Minto on 24 July 2025

To ask the Scottish Government what assessment it has made of the potential of embedding specialist support practitioners, such as specialist nurses, dieticians, and psychologists, within local settings, in order to (a) improve (i) access to holistic care and (ii) the management of long-term conditions, such as Crohn’s disease and colitis, closer to home and (b) prevent avoidable hospital admissions.

The Scottish Government is committed to ensuring that people living with long term conditions like inflammatory bowel disease (IBD), including Crohn’s disease and ulcerative colitis, can access high-quality, person-centred care.

We have provided additional investment to NHS boards since 2015 to support clinical nurse specialist provision and care. Boards make the decisions on where to prioritise this funding based on local need.

The Scottish Government expects NHS boards to ensure that patients with specialist conditions have appropriate access to a range of professionals, including specialist nurses, to ensure the best management of their condition. NHS Boards have been asked to work in partnership with third sector organisations, social care partners and patients with specialist conditions in designing and delivering services.

Question reference: S6W-38145

Asked by: Brian Whittle, MSP for South Scotland, Scottish Conservative and Unionist Party
Date lodged: Monday, 02 June 2025
Current Status: Answered by Neil Gray on 11 June 2025

To ask the Scottish Government what patient-facing features will be available to people piloting the national Digital Front Door app within NHS Lanarkshire later in 2025.

The initial users in NHS Lanarkshire will be patients accessing dermatology outpatient services. They will have the following features:

Secure login using a unique ID through Scot Account.
Receive digital letters from the dermatology team
View dermatology appointments
Access personal health information, including demographics, medications and allergies.
Use a national service finder to locate health and care services.

These details have been published in our Operational Improvement Plan which you can access here; https://www.gov.scot/publications/nhs-scotland-operational-improvement-plan/pages/5/.

To ensure good practice in our approach, we intend for the initial version to be tested thoroughly in Lanarkshire before we seek to spread and scale it across Scotland.

Question reference: S6O-04775

Asked by: Brian Whittle, MSP for South Scotland, Scottish Conservative and Unionist Party
Date lodged: Wednesday, 04 June 2025
Current Status: Taken in the Chamber on 11 June 2025

To ask the Scottish Government what assessment it has made of any economic implications of the Scottish Fiscal Commission’s latest forecasts and the potential impact of rising public health costs on businesses across Scotland.

Question reference: S6W-37823

Asked by: Brian Whittle, MSP for South Scotland, Scottish Conservative and Unionist Party
Date lodged: Thursday, 22 May 2025
Current Status: Answered by Neil Gray on 30 May 2025

To ask the Scottish Government what its position is on whether legislation will be required to deliver an integrated social care and health record, as referenced in its Care in the Digital Age: Delivery Plan 2024-25.

The Scottish Government are committed to delivering a digital health and care record and can confirm that legislation is not required to create such a record. However, Part 2 of the Care Reform (Scotland) Bill, if passed, will create the enabling conditions for success of a digital health and care record by improving information sharing and usage between individuals and organisations within the health and social care system. The Scottish Government is listening to the views of MSPs presented at Stage 2 of the parliamentary process and considering what amendments may be useful in delivering a record that improves outcomes for people in Scotland.

Question reference: S6W-37646

Asked by: Brian Whittle, MSP for South Scotland, Scottish Conservative and Unionist Party
Date lodged: Thursday, 15 May 2025
Current Status: Answered by Jenni Minto on 27 May 2025

To ask the Scottish Government whether investment for Crohn’s disease and colitis is included as a "similar condition" in the £4.5 million of funding announced in the Programme for Government 2025-26 for new specialist support for long COVID, myalgic encephalomyelitis (ME), chronic fatigue and other similar conditions.

Long COVID and Myalgic Encephalomyelitis (ME)/Chronic Fatigue Syndrome (CFS) are examples of post-acute infection syndromes. Work is ongoing to determine how the additional £4.5 million announced in the 2025-26 budget to deliver new specialist support will be allocated to NHS boards. It is expected that NHS boards will develop support based on their understanding of local population need and synergies with existing local service provision.

Question reference: S6W-37645

Asked by: Brian Whittle, MSP for South Scotland, Scottish Conservative and Unionist Party
Date lodged: Thursday, 15 May 2025
Current Status: Answered by Jenni Minto on 27 May 2025

To ask the Scottish Government, further to the announcement within the Programme for Government 2025-26 of £4.5 million for new specialist support for long COVID, myalgic encephalomyelitis (ME), chronic fatigue and other similar conditions, what it identifies as "similar conditions".

Long COVID and Myalgic Encephalomyelitis (ME)/Chronic Fatigue Syndrome (CFS) are examples of post-acute infection syndromes. Work is ongoing to determine how the additional £4.5 million announced in the 2025-26 budget to deliver new specialist support will be allocated to NHS boards. It is expected that NHS boards will develop support based on their understanding of local population need and synergies with existing local service provision.

Question reference: S6W-37566

Asked by: Brian Whittle, MSP for South Scotland, Scottish Conservative and Unionist Party
Date lodged: Tuesday, 13 May 2025
Current Status: Answered by Neil Gray on 27 May 2025

To ask the Scottish Government, further to the answer to the second supplementary to question S6O-04619 by Neil Gray on 7 May 2025, whether it will provide an update on the delivery of an electronic, single shared patient record system.

The provision of patient record systems remains the operational responsibility of Health Boards, but at a national level I can confirm it is our intention to launch the first version of a personalised digital health and social care service from December 2025. This was set out in the answer to question S6W-30875 on 11 November 2024.

The Scottish Government emphasises that this provides citizens with access to their own health and care data and accordingly will address the desire across Scotland for individuals to have access to a single shared patient record.

It is important to recognise that implementation of the service for our workforce, will build on our current Clinical Portal system, which currently enables many Health Boards across Scotland to have access to health information as part of the integrated record. This commitment is also set out in our recently published Programme for Government 2025-26 -https://www.gov.scot/binaries/content/documents/govscot/publications/advice-and-guidance/2025/05/programme-government-2025-26/documents/programme-government-2025-26/programme-government-2025-26/govscot%3Adocument/programme-government-2025-26.pdf.

We highly recognise the importance of ensuring staff have access to the correct patient information where required, and we continue to improve this through development of our National Digital Platform, which enables the storage and integration of data for digital services that are public facing. We have also applied our learning collated from the use of the Clinical Portals, and we will continue to collate and apply intelligence gathered to our ongoing development of Integrated Records.

All answers to written Parliamentary Questions are available on the Parliament’s website, the search facility for which can be found at https://www.parliament.scot/chamber-and-committees/written-questions-and-answers

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