I recognise that endometriosis is a painful and long-term condition, which may result in young people being absent from school for a prolonged period. As acknowledged in our national guidance on attendance, ‘Included, Engaged and Involved Part 1,’ there are links between poor attendance and attainment. It is therefore important that education authorities provide appropriate support to meet the educational needs of children or young people where endometriosis is impacting on their attendance.

Teachers are not medical professionals and therefore cannot be expected to have a detailed knowledge of all medical conditions that might affect children and young people. Training requirements should instead be planned for and driven by the individual needs of children and young people in the schools in the area. Similarly, it would not be possible for our guidance to provide detailed information for every medical condition which might cause a healthcare need in schools. For this reason our guidance on ‘Supporting children and young people with healthcare needs in schools’ does not make reference to specific health conditions such as endometriosis. If a child and young person is diagnosed with a longer term condition or develops healthcare support needs, it is normally the role of parents/carers to notify the school that they require the school's input to support their child's needs. Our guidance recommends that if a young person were to be diagnosed with any health condition which might affect their schooling, they and their parent or carer should seek a meeting with the school at the earliest opportunity to discuss their potential additional support needs. This will enable appropriate information about their healthcare needs, including impacts associated medication to be shared and enable the consideration of an individualised healthcare plan.

Where endometriosis results in a young person being absent from school for a prolonged period, the Education (Scotland) Act 1980 requires that education authorities make special arrangements for pupils to receive education elsewhere than at an educational establishment. Alternative arrangements for education will depend upon the young person’s individual circumstances; however it could be provided, for example, at home or in a hospital setting.

Income replacement benefits such as Employment and Support Allowance and Universal Credit, which provide financial support to people of working age who are unable to work due to illness, are fully reserved to the UK Government. However our Adult Disability Payment provides financial support to recognise the additional costs of living with a disability or long-term health condition.

The Health and Social Care Alliance Scotland (the ALLIANCE) has continued to support the Women’s Health Plan through their dedicated lived experience programme. This has included the development of the conversation café toolkit, available for anyone to use, to encourage information sharing and peer support on areas of women’s health including menstrual health and endometriosis.

More information can be found in the ALLIANCE Final Report on Women’s Health Plan.

Menstrual health and wellbeing education is a key part of relationships, sexual health and parenthood (RSHP) education. RSHP education is an integral part of the health and wellbeing area of the Scottish curriculum, Curriculum for Excellence.

An online RSHP teaching resource, (www.rshp.scot) was published in 2019 and provides age and stage appropriate learning activities on RSHP education for use in all education settings and is aligned to Curriculum for Excellence. This resource includes learning activities on menstruation from second level (P5 to P7), with endometriosis introduced at third/fourth level (S1 to S3).

The Women's Health Plan Implementation Programme Board was established to oversee and drive the delivery of the Plan. The Board brought together a range of organisations, including COSLA and Trade Union representation, to ensure that the actions within the Plan are implemented effectively and in partnership, with continued input and influence from women themselves.

The Boards stood down with the close of the first phase of the Plan. Updated governance will be developed alongside the second phase, to be published in 2025.

In NHS Scotland, a national menopause and menstrual health policy was published in October 2023, to seek to better support employees and their line managers.

We recognise the importance of ensuring that everyone understands what a normal period is. We have developed a range of resources that anyone can access to learn more about periods, period symptoms and conditions like endometriosis, PCOS and PMS. More information can be found in the Women’s Health Plan 2021 - 2024 Final Report.

Additionally, in March 2023 we delivered an engagement campaign in partnership with Young Scot to increase young people’s awareness of endometriosis. The campaign is aimed at those aged 11 to 25 in Scotland, including boys and young men. The campaign includes information about endometriosis symptoms, provides information about available support and provides information on how to support a friend in the process of diagnosis or who may have endometriosis.

Menstrual health and wellbeing education is a key part of relationships, sexual health and parenthood (RSHP) education. RSHP education is an integral part of the health and wellbeing area of the Scottish curriculum, Curriculum for Excellence.

An online RSHP teaching resource, (www.rshp.scot) was published in 2019 and provides age and stage appropriate learning activities on RSHP education for use in all education settings and is aligned to Curriculum for Excellence. This resource includes learning activities on menstruation from second level (P5 to P7), with endometriosis introduced at third/fourth level (S1 to S3).

NHS Education for Scotland (NES) has launched an e-learning module on menstrual health available on Turas Learnand in particular is aimed at those working in primary care. The school nursing workforce and school counsellors can also access this training as required.

Through the NHS Inform Women’s Health Platform, we have made information on a range of health topics available to women online and in one place. Connections have been made throughout the platform with content on menstrual health symptoms, like heavy menstrual bleeding, linking to more information on possible causes, such as endometriosis, helping to raise awareness of the condition and supporting women to access the information they need when they need it.

As of December 2024 there have been:

• Almost 65,000 users on the life sections
• Over 986,000 views on the Periods pages
• Just under 3.2 million views on the Menopause pages

More information about the Women’s Health Platform can be found in the Women’s Health Plan Final Report.

The Scottish Government has supported the development of The Endometriosis Care Pathway for NHS Scotland which aims to support healthcare professionals to provide a holistic approach and timely care for those with endometriosis and endometriosis-like symptoms. All NHS Boards should be taking steps to implement the pathway.

To support health care professionals to improve their knowledge and understanding of endometriosis NHS Education for Scotland (NES) has been commissioned to create a bespoke training package and framework focussed on menopause and menstrual health, which includes endometriosis, for healthcare professionals in Primary Care.

The Scottish Government has also worked with NHS Education for Scotland to deliver an endometriosis masterclass for health care professionals across Scotland on diagnosis, treatment and current research into endometriosis.

Additionally, through the NHS Inform Women’s Health Platform, we have made a range of information on endometriosis available to women online. This has included the Endometriosis UK Pain and Symptom Diary as well as access to a self-help tool on periods and mental wellbeing.

A menstrual health symptom questionnaire has also been developed by NHS Education for Scotland and is available through the TURAS platform for healthcare professionals to share with women. It will also be available for women to access directly via the NHS Inform Women’s Health Platform shortly.