This data is not routinely collected however, the Report “Dismissed, ignored and belittled - The long road to endometriosis diagnosis in the UK” published by Endometriosis UK in March 2024 states that a survey of 4,371 people who have received a diagnosis of endometriosis shows ...52% had visited A&E at least once. 26% of respondents visited A&E 3 or more times with symptoms prior to diagnosis.

Our ambition is for a Scotland where health outcomes are equitable across the population so that all women enjoy the best possible health – throughout their lives. That is why endometriosis is one of the key priorities in the Women’s Health Plan and will continue to be so.

Information about the progress to date against each of the priorities in the Women’s Health Plan can be found in the Women’s Health Plan Final Report.

Our ambition is for a Scotland where health outcomes are equitable across the population so that all women enjoy the best possible health – throughout their lives. That is why endometriosis is one of the key priorities in the Women’s Health Plan and will continue to be so.

We are continuing work to improve the data we have on women’s health so that we can understand better the health of women and girls in Scotland, in the short, medium and longer term – including endometriosis.

More information on women’s health data can be found in the recently published data landscape review.

The figures below relate to Endometriosis research funding directly awarded following a competitive independent review process either through Chief Scientist Office’s (CSO) project funding committees, or fellowship funding panels.

This includes the 2022 Scottish Government collaboration with Wellbeing of Women on a £250,000 research call. The research is primarily being run by researchers at The University of Edinburgh and will look at a non-hormonal drug in the management of endometriosis-associated pain.

Most awards are multi-year. The figures below relate to the year in which the funding was committed rather than a breakdown by year of the spend profile for individual projects or fellowships

2007 0

2008 0

2009 0

2010 0

2011 0

2012 £110,198

2013 0

2014 0

2015 £27,639

2016 0

2017 0

2018 £162,651

2019 £30,000

2020 0

2021 0

2022 £394,510

2023 £349,999

2024 £623,028

Full details of CSO’s direct research funding awards are available from the CSO website Funded Research – Chief Scientist Office

The Scottish Government is committed to ensuring those living with endometriosis can access the best possible care and support.

There is now an Endometriosis Care Pathway for NHS Scotland which aims to support healthcare professionals to provide a holistic approach and timely care for those with endometriosis and endometriosis-like symptoms. All NHS Boards should be taking steps to implement the pathway.

Most individuals with endometriosis can be managed within secondary care. For patients with more complex symptoms or who need complex surgery, there are three regional specialist endometriosis centres in Aberdeen, Edinburgh and Glasgow that provide multidisciplinary specialist care across Scotland.

To support health care professionals to improve their knowledge and understanding of endometriosis NHS Education for Scotland (NES) has launched an e-learning module on menstrual health available on Turas Learn. It is open to anyone working in NHS Scotland and in particular is aimed at those working in primary care.

Further training resources have also been provided through the Women’s Health Masterclass on endometriosis which provided information on diagnosis, treatment and current research on endometriosis, raising awareness of the Pathway with attendees. The resources from this event are also available on Turas Learn.

The Scottish National Menstrual Health Specialist Network provides healthcare professionals with a special interest in menstrual health a forum for peer support and sharing expert clinical advice and best practice related to menstrual health symptoms and conditions.

More information can be found in the Women’s Health Plan 2021 - 2024 Final Report.

We are committed to ensuring those living with endometriosis are able to access the best possible care and support and that they benefit from healthcare services that are safe, effective and put people at the centre of their care.

Through the NHS Inform Women’s Health Platform, we have made a range of information on endometriosis available to women online.

This has included the Endometriosis UK Pain and Symptom Diary as well as access to a self-help tool on periods and mental wellbeing.

A menstrual health symptom questionnaire has also been developed by NHS Education for Scotland and is available through the TURAS platform for healthcare professionals to share with women. It will also be available for women to access directly via the NHS Inform Women’s Health Platform shortly.

The Endometriosis Care Pathway for Scotland, adapted from NICE guidance, provides a streamlined integrated primary, secondary and tertiary care pathway aimed at providing a holistic approach and timely care for those with endometriosis and endometriosis-like symptoms.

The Scottish National Menstrual Health Specialist Network provides healthcare professionals with a special interest in menstrual health a forum for peer support and sharing expert clinical advice and best practice related to menstrual health symptoms and conditions.

We will build on the progress set out in the Women’s Health Plan 2021 - 2024 Final Report, as we work towards ensuring those living with endometriosis are able to access the best possible care and support and that they benefit from healthcare services that are safe, effective and put people at the centre of their care.

In March 2023 we delivered an engagement campaign in partnership with Young Scot to increase young people’s awareness of endometriosis. The campaign is aimed at those aged 11 to 25 in Scotland. The campaign includes information about endometriosis symptoms, provides information about available support and provides information on how to support a young person in the process of diagnosis or who may have endometriosis.

We are committed to ensuring those living with endometriosis are able to access the best possible care and support and that they benefit from healthcare services that are safe, effective and put people at the centre of their care.

Through the Women’s Health Plan we are taking steps to support both women and health professionals to learn more about endometriosis, the symptoms and treatment options to improve the diagnostic process. Our Women’s Health Plan 2021 - 2024 Final Report on progress provides further details of our work to date.

When developing the next phase of the Plan we will build on this progress and seek to ensure that all women receive a timely diagnosis for endometriosis together with access to the care and support that they need.

For patients on a waiting list to see a healthcare specialist there is information available on NHS Inform with advice on health and wellbeing whilst they await their appointment. More information can be found at: Waiting well | NHS inform.

We are committed to ensuring those living with endometriosis are able to access the best possible care and support and that they benefit from healthcare services that are safe, effective and put people at the centre of their care.

Through the Women’s Health Plan we have developed the Women’s Health Platform on NHS Inform which includes an endometriosis page with consistent, reliable and accessible information, including a lived experience film, empowering women to make informed decisions about their health. This includes information on endometriosis and fertility.

The endometriosis care pathway for NHS Scotland aims to support healthcare professionals to provide a holistic approach and timely care for those with endometriosis and endometriosis-like symptoms and ensures that healthcare professionals are considering the impact of endometriosis on a woman’s fertility.

We are committed to ensuring those living with endometriosis are able to access the best possible care and support and that they benefit from healthcare services that are safe, effective and put people at the centre of their care.

This year, we have allocated over £450,000 to gynaecology from our £30 million targeted investment in planned care, delivering around 3,500 additional new outpatient appointments.

The 2025-26 Budget, if approved by Parliament, will provide a record £21 billion for Health & Social Care, including a commitment to provide £200 million to help reduce waiting times and address delayed discharge.