This work was agreed in February 2020 however was subsequently paused due to capacity issues related to the COVID-19 pandemic. It will be further considered by the National Advisory Committee for Neurological Conditions alongside our emerging priorities for implementation of the commitments within the Neurological Care and Support: Framework for Action 2020-2025 .

The Chief Scientist Office is part of the Scottish Government Health and Social Care Directorates. Detail on the work of the Chief Scientist Office is available online: https://www.cso.scot.nhs.uk.

Research studies taking place in NHS Scotland and funded by members of the Association of Medical Research Charities are eligible for support through the NHS Research Scotland infrastructure arrangements: https://www.nhsresearchscotland.org.uk/services.

The NHS Research Scotland Neuroprogressive and Dementia Network is funded by the Scottish Government to promote a culture of clinical research in neurological and dementia research across Scotland and to support patient recruitment into high quality studies from both rural and urban areas: https://www.nhsresearchscotland.org.uk/research-areas/dementia-and-neurodegenerative-disease.

I refer the member to the answer to question S6W-13700 on 23 January 2023. All answers to written Parliamentary Questions are available on the Parliament's website, the search facility for which can be found at https://www.parliament.scot/chamber-and-committees/written-questions-and-answers

In 2019, we published a Neurological Care and Support – a National Framework for Action 2020-25 , with a vision to ensure everyone with a neurological condition can access the care and support they need to live well, on their own terms.

Commitment 12 of the Framework aims to gather better data regarding neurological conditions. The Scottish Epilepsy Register project, funded through the Framework, is focussed on improving data collection and patient safety and driving up standards of care. We are exploring with NHS National Services Scotland proposals to scale up and consolidate the work of the Register, which may ultimately serve as a replicable model for other neurological conditions.

Scottish Burden of Disease data is also available on a number of neurological conditions including epilepsy, multiple sclerosis and Parkinson’s disease: Scottish Burden of Disease (shinyapps.io)

I further refer the member to answer S6W-13707 and S6W-13708 on 23 January 2023. All answers to written Parliamentary Questions are available on the Parliament's website, the search facility for which can be found at https://www.parliament.scot/chamber-and-committees/written-questions-and-answers

I refer the member to the answer to question S6W-13687 on 23 January 2023. All answers to written Parliamentary Questions are available on the Parliament's website, the search facility for which can be found at https://www.parliament.scot/chamber-and-committees/written-questions-and-answers

I refer the member to the answer to question S6W-13716 on 23 January 2023. All answers to written Parliamentary Questions are available on the Parliament's website, the search facility for which can be found at https://www.parliament.scot/chamber-and-committees/written-questions-and-answers

In March 2022 the Scottish Government published The National Workforce Strategy for Health and Social Care in Scotland. This Strategy sets out a framework to shape our health and social care which includes Allied Health Professionals and Healthcare Scientists, over the next decade, placing training, wellbeing, job satisfaction and Fair Work at its heart. As part of the Strategy’s work, the Scottish Government has undertaken an AHP Workforce and Education Policy Review and a Healthcare Science Baseline Education Review.

Scottish Government has previously invested £180,000 in the development of a national care framework for Huntington’s Disease, with a view to the potential adoption of this approach in other neurological conditions. Our National Advisory Committee for Neurological Conditions will consider whether development of frameworks for additional neurological conditions should be prioritised as part of our ongoing implementation of the commitments within the Neurological Care and Support: Framework for Action 2020-2025 .

This information is not held centrally. This is a matter for Skills Development Scotland and NHS Boards.

I refer the member to the answer to question S6W-13707 on 23 January 2023. All answers to written Parliamentary Questions are available on the Parliament's website, the search facility for which can be found at https://www.parliament.scot/chamber-and-committees/written-questions-and-answers